John had physical therapy today for the first time since he arrived at GH. I saw him in the evening and he was uncomfortable and wiped out. His mouth is always parched and since he has the NG tube, no water or food by mouth. The dryness makes him miserable. The only thing he can do is clean his mouth with wet swabs. He also saw the speech therapist today. She'd like to do another swallow study since he's a little stronger than when he underwent the test at UPMC. They did another x-ray and they still see the diffused ileum and his PCP would like a surgeon to look at him. A surgeon? Don't think he having surgery anytime soon unless it's for a new liver. I called his liver doctor's nurse and relayed the info. I'd like to know if they were already aware of this and what should we do about it.
I'm pretty sure the transplant team reviewed his case today, although I don't believe the transplant surgeons have seen him yet and that needs to happen soon. I have a name and number for the transplant coordinator and I'll be calling her tomorrow to see what's next. Sigh. This waiting for their decision is very nerve-wracking!
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