Hockey Night :-(

Forgot to post last night. John is actually doing a little better. Yesterday he lost the 2 pounds he gained after getting blood products plus one more. And today he lost 4 more and a 1/2 inch off his belly. Yesterday we talked with the dietitian and he'll now get 6 small meals/snacks (they talked about doing this before). The only thing that needs to be pureed is meat. So he can have cereal, grilled cheese, PB&J, etc. I think he'll eat better just because things will taste better.

Last evening he remained awake and alert and tonight he watched the hockey game (such as it was) until 10:00. I've noticed that as long as there is something for him to do, he can remain alert and not feel the need to sleep so much. The fatigue is part of liver disease, so his energy level is always low.

Today I got him a couple of resistance tubes and a light hand weight. I told him we were going to start exercising! He needs a lot of motivation. Don't think I mentioned it here, but his physical and occupational therapy have been discontinued because he wasn't showing much progress. I've got a call into the insurance company to appeal it and hopefully get him back on it again now that he's losing the excess fluid. He REALLY needs to continue the therapy.

Thanks once again for your prayers! xo